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GP told parents their eight-year-old son's cancer was 'just growing pains'
@Source: yahoo.com
In 2023, proud parents Steph and Jordan were told one of the most awful things a parent can hear - their eight-year-old son had cancer.
In the weeks leading up to his diagnosis, Frazer had been complaining to his parents of leg pain, so they took him to the GP who diagnosed him with "growing pains." Though as the weeks went by, the so-called "growing pains" were not going away, and both Steph and Jordan knew it was something a lot more serious.
"Frazer is, and was, a really active little boy," said mum Steph, 36. "He'd be running across the football field fine and then on the way back he would have a little limp, and complained of pain in his knee. Stay informed on Carms news by signing up to our newsletter here.
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On December 12, 2023, we were supposed to have a GP appointment but they ended up cancelling it. At the time, Frazer was playing rugby at the Scarlets' stadium in Llanelli, and he again complained of pain but said he did not want to stop playing.
"We knew it was more than just growing pains, and we had to fight to physically see a GP. Eventually when we got to see a doctor they referred us straight away to our local hospital, Glangwili in Camarthen.
"Following an X ray and a CT scan, the hospital said they thought he had an infection in his knee, possibly an abscess, that needed to be drained straight away. Overnight we were transferred to Noah's Ark in Cardiff and in the morning Frazer would be going in for surgery to drain the 'abscess.'"
After the surgery, the surgeon said something did not seem right and a biopsy was performed the next day. At this point, father-of-two Jordan described how Frazer was in a lot of pain and could not walk.
After a gruelling two week wait in a hospital an hour and a half away from home, two days before Christmas, on December 23, 2023, Steph and Jordan received the call that it was "highly likely" Frazer had osteosarcoma, a rare form of bone cancer. They chose to keep this news to themselves, to ensure their sons Nathan and Frazer had a normal and happy Christmas.
"It ruined us, it broke our hearts," said Jordan. "But we chose to run a normal Christmas with our families and the kids, and not tell anyone, as we were holding onto the hope that it was going to be that slim chance that they had got it wrong and it was just an infection."
After Christmas, in January, the results of a third biopsy that was done at Birmingham Children's Hospital confirmed that Frazer had cancer.
In the face of such a daunting diagnosis, Frazer’s parents say he showed incredible bravery. He began chemotherapy almost immediately, but after three rounds it became clear the treatment wasn’t working. The only option was an above-the-knee amputation.
"Frazer was in school when we found out it was definitely cancer," said Jordan. "We collected him and his younger brother, and found ourselves having to break the news to them.
"We started by telling him there was a chance he would lose his hair, which obviously upset him, and that we were going back to hospital where he will be having some more operations and some medicine."
Mum Steph remembered: "On the April 29, 2024, Frazer had his leg amputated. He was up the next day doing physio and we were home within 4 days.
"Frazer was straight back to chemo and went on for another four rounds of new intense chemotherapy, weekly immunotherapy treatment and on his two day breaks he was undergoing physio for his new prosthetic leg. Frazer had his last chemo and received his prosthetic leg the day before his birthday at the end of October 2024.
"He continued to have weekly immunotherapy treatment until this January, which is when we found out he had a lymph node on his lung. He then had thoracic surgery in The Royal Brompton Hospital in London.
"Frazer picked up an infection which resulted in him being in intensive care but thankfully by the end of February he made a full recovery. He is now receiving scans every three months but is back in school with his friends and once again enjoying his childhood.
"Exceeding all our expectations, a year after Frazer had his leg amputated he is back playing football for our local team, back swimming, playing the drums and he even took part in his schools sports day.
"The support from friends, family, Frazer's school and the community has been unbelievable. Frazer is such a strong, positive and determined little boy, we can't wait to see what he achieves next. We couldn't be prouder."
Mum Steph, dad Jordan, and younger brother, Nathan, aged seven, never left Frazer’s side. Steph said: "Frazer has been an inspiration to us all. He amazes us every single day. It feels like we’ve got Frazer back again. He’s turned back into a kid again."
Throughout it all, Frazer remained a positive ray of light to everyone he came across. His dad recalled shaving off his hair alongside Frazer, and Frazer being annoyed because he did not want his dad to lose his hair as well. Meanwhile, Frazer and his younger brother Nathan brought joy to the Rainbow ward in Noah's Ark Children's Hospital, handing out "positivity potatoes" to the children and staff.
Though Frazer's diagnosis forced him to grow up early and endure pain no child should ever have to, Frazer has come out the other side of a life-changing diagnosis as a "happy" and "cheeky" child who is "still fighting."
The Noah's Ark Children's Hospital Charity in Cardiff is hosting a Superhero 5K Fun Day on Sunday, June 22, in Sofia Gardens, and have labelled Frazer as one of their superheroes. He hopes to complete as much of the 5k unaided as possible.
"We are so grateful to Noah's Ark for making our stay in hospital fun - Frazer's favourite times being pizza nights and a visit from the balloon maker," said Steph and Jordan.
"They were always providing new and fun ways to keep the children happy and occupied. Please donate to them so they continue to offer their amazing support to the children and families at Noah's Ark Hospital.
"Frazer wants to thank Noah's ark by raising as much money as possible. He is training for the 5k by going on walks and using a walking machine to be able to walk as much of the 5k as possible." To donate to Frazer's campaign you can click here, or for more information or to register for the 5k event, visit Noah's Ark's charity page.
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